mental health Posts

Book Post 35: 21 April – 19 May 2019 / Trade list

Book Post 35 is being uploaded after a month. It focuses on the trade list. This include some of the titles I have received in the past few weeks.

20 May 2019

Sarah Moon’s “Sparrow”

And then there it is, our new, terrible silent routine. And to top it off, I have no birds and the world feels like a different kind of dark than it felt before. Mom isn’t perfect, but I miss her. I miss her picky neatness, I miss her bothering me about taking my nose out of a book and making a friend for once, I miss her getting on my case about my hair. I miss telling her about what I’m reading, what I’m thinking, asking her about work, listening to her carry on about Aunt Joan and whatever drama she’s gotten into. I miss her. There is a sadness I can’t shake, that’s not just from breakfast. There are no birds by the feeder. There aren’t pigeons cluttering the sidewalk as I go to school. I know, now, that last night’s dream was the last flight I’ll take. 

Sarah Moon‘s debut novel for young adults Sparrow is about a teenager of the same name who has a nervous breakdown. Sparrow is fourteen. She was whisked away to hospital from school after being discovered on the roof. Sparrow maintains she was bird watching as she has always been fascinated them fly. Sparrow lives with her mother, who is a single parent. Sparrow is named after the bird by her mother because she was “so small and brown, almost breakable, but so strong. Tiny but mighty…”. Few weeks later Sparrow is released in her mother’s care with the stipulation she takes her prescribed medication and visits a therapist regularly. So it is fixed that Sparrow attends regular sessions with Dr. Katz which are protected by doctor-patient confidentiality and even Sparrow’s mother cannot sit in upon the hour-long meetings. At first Sparrow refuses to speak to Dr. Katz but after weeks of therapy Sparrow begins to come around. It is probably listening to Dr. Katz playlist which begins to break the barriers for Sparrow. So much so she orders the very same songs/bands she heard during therapy for her listening pleasure at home. All through months of treatment and close questioning by her mother Sparrow is adamant that she was not trying to kill herself but just wanted to be with the birds. Probable reason for her being found alone on the roof ledge was she was devastated upon hearing of the tragic death of her favourite librarian, Mrs Wexler, in a traffic accident. Mrs. Wexler had been warm and welcoming to the shy and reserved Sparrow, encouraging the little girl to sit in the library any time she felt like it, read, participate in the book club etc. Mrs. Wexler offered the fragile little Sparrow a refuge from a world which constantly overwhelmed her.

Sparrow begins from the moment Sparrow is released from the hospital. She is portrayed as a very lonely girl who slowly opens out under Dr Katz’s patient guidance. By the end of the novel Sparrow finds the smallest steps like conversing with other girls of her age still a daunting task but at least she is doing it! It suddenly dawns upon her during the finale when she is running away from her responsibility that the feeling of being ready will never come. She has to muster courage. “I am not going to be ready. I’m going  to have to do this without being ready.” The ultimate epiphany is that the very same music that helped her in therapy is where she finally gets what she has been craving for — to fly away, for her limbs to go light. In fact Sarah Moon created her playlist for Sparrow on Spotify. In it are listed all the pieces of music referenced in the story.

Depression comes in many shades. With the recent suicides of two prominent people Kate Spade and Anthony Bourdain within a week of each other has suddenly put the spotlight on mental health. These issues were always there and always discussed but the magnitude of this problem is unthinkable. To quote Dr Anirudh Kala, Clinical Director, Mind Plus:

Clinical depression is the commonest mental illness and it is true that life time prevalence of depression(which means how many people at one time or the other during their life time will suffer from it) is about 18-20% and many times it just comes out of the blue without any stress like any medical illness which Clinical Depression  actually is a medical illness. Both drugs and psychological treatment methods help and these help the best when used together.
However many well meaning but ill informed persons and some pop psychologists keep telling the person that the key to getting matter is to feel positive implying that the patient can if he willed to feel positive and get better, which is not true. You cannot will away your depression like you cannot will away your fever or your thyroid problem. And it makes the person worse because because he is told he can and he cant’. That is why the quip,’ Positivity is a scam.’
( In fact Dr Kala is also a debut author with his forthcoming collection of short stories The Unsafe Asylum: Stories of Partition and Madness)

In Longreads essay “Surviving Depression” by Danielle Tcholakian written after the deaths of the Bourdain and Spade one of the sanest pieces of advice shared for those who battle depression every day as well as those around them is:

…the biggest lesson I’ve learned in wrestling with this illness for nearly 20 years. You can’t get out of it alone. It is also, confusingly, true that no one can save you — you’re always the one who has to do the work, who has to slog through the muddy darkness — but the eminently human kindnesses of friends and family along the way are what make the slog even remotely possible. And the truth is, you don’t have to do much of anything most of the time. Just be there. . . . Depression is a beast that swallows you whole and forces you to live inside it until you fight your way out — always with help, always with the others safely outside the beast who can pull you back. 

Writing about a teenager whose mental health is being questioned by everyone around her even though the teenager herself is under the impression that her reality makes perfect sense is probably not easy. Yet Sarah Moon’s undeniable wizardry is evident in her sensitive storytelling. Sparrow can be challenging even for an experienced author to create as it is a potential minefield if not handled well. It can fall apart easily. After Nathan Filer’s The Shock of Fall this is another great young adult novel to add to a school reading list. Perhaps to be read in conjunction with Matt Haig’s Reasons to Stay Alive which is not a young adult novel, nevertheless an excellent memoir about coming-to-terms with depression and easily accessible to readers of all ages.

Do read Sparrow. It is not always easy to read for it can be a challenge to read but it is time well spent.

Sarah Moon Sparrow Arthur A. Levine Books, An imprint of Scholastic Inc., New York, 2017. Hb. pp. 270 

21 June 2018

 

 

 

A.J. Finn’s “The Woman in the Window”

[bwwpp_book sku=’97800626784160000000′]  A. J. Finn’s debut psychological thriller The Woman in the Window is about child psychologist Anna Fox who has a bad case of agoraphobia. Confined to her refurbished brownstone in Harlem she uses her Nikon to take photographs of her neighbours. It is very reminiscent of Alfred Hitchcock’s storytelling particularly Rear Window. The resemblance is probably intentional as Dr Fox is addicted to watching black and white films of the past, many of the classic Hitchcock films are her perennial favourites. She suffers from depression as well so is constantly on a cocktail of prescription chemicals that are constantly being titrated by her doctor. He has to constantly advise her not take alcohol as she is fond of drinking Merlot. ( To her delight she has discovered that for an agoraphobic person like her it is convenient to order cartons of Merlot online and it will be delivered at home.) Otherwise she whiles away her time participating in online group chats with other agarophobic patients and playing chess.

The Woman in the Window is about Anna Fox who is confined at home out of choice and the supposed murder she witnesses across the street. Unfortunately she has a hard time persuading neighbours and the police that it is true and not a hallucination under the deadly influence of medicines and alcohol. The story takes a while to build up though the details are fascinating. It is only about 100 pages into the story that it zips along. It is being promoted to be a thriller in the same vein as Gone Girl and Girl on the Train. The chapters are short, sometimes only a few paragraphs, a form of writing apparently influenced by James Patterson’s writing.

A. J. Finn’s debut is being much talked about as it was sold in a hotly contested auction only to be won by William Morrow in a deal worth seven figures. The movie rights have been sold to Fox 2000 to Hollywood producer Scott Rudin who won an Oscar in 2008 for the adaptation of Tom McCarthy’s No Country for Old Men. It is rumoured that Kate Winslet is in the running for the lead role. So far the book has already been sold in 38 book markets. A.J. Finn is the nom de plume for publishing executive Daniel Mallory who used to work at William Morrow but after the runaway success of his manuscript he has quit his day job. Instead he is focussing on writing his next novel. he is being represented by Felicity Blunt, Curtis Brown Literary Agency, sister to actress Emily Blunt who acted in the film version of Girl on a Train.

The Woman in the Window is also the first debut novel to have made it immediately to the NYT Bestseller List in nearly 12 years. Undoubtedly the influence of Hitchcock exists in the story not necessarily due to the constant references to his films. Though the story is a story that has been told many times before and there are sufficient hints in this novel itself to old films to how the plot is going to develop, yet there it rings true for the character sketch of Anna Fox. Apparently Daniel Mallory suffers from bipolar disorder and had been misdiagnosed for a very long time. So the descriptions of Anna and her breakdown are to a large extent “authentic”. Otherwise the plot itself is very thin and relies heavily on many details being shielded from the reader until the explosive conclusion. A very old fashioned trick. Be that as it may it is a book that will be read, watched on screen and talked about for a long time for the richness of detail and the pitch perfect suspense.

A. J. Finn The Woman in the Window HarperCollins Publishers, London, 2018. Pb. pp. 430 Rs 399 

12 March 2018 

Of books tackling medical science

Of late there have been a deluge of books making exploring medical science accessible to the lay reader too. This recognition of making technical knowledge available to the public in manageable morsels is a remarkable feat.

Maylis de Kerangal’s  Mend the Living is a novel about a young man who goes into an irreversible coma after a car accident. His organs, including the heart, are to be harvested. Mend the Living is primarily about the heart being transplanted. It is a haunting book for sharing different perspectives of all those affected by the death of Simon Limbeau. It is not only his immediate family — his parents, younger sister and girlfriend, but also the medical personnel responsible for Simon and the patients who would be receiving his organs. It is an extraordinarily mesmerising story, almost poetic in its narration, which has been translated fluidly from French into English by Jessica Moore. Here is a fabulous interview of the author by the translator published in Bomb magazine who insists “I have a strong conviction: I consider the translator as a writer, an author. I always have the feeling of being a translator myself, translating French into another language, which is the French of my books. All this nomadism of texts, the movement from one language to another, I find it so stimulating and rich. I don’t want to say at all that books’ themes, subjects, and stories don’t interest me, but for me what comes first is how a book provokes an experience of the world via language. So all these foreign languages remind me of the fact that I feel like a translator myself, and that translators, in a way, are the authors of these books.” Mend the Living, a work of fiction, won the Wellcome Book Prize 2017 — a surprising choice given that most often it is awarded to non-fiction.

Poorna Bell’s memoir Chase the Rainbow  is a tribute to her husband who committed suicide. He was a journalist who was able to mask effectively his acute depression and heroin addiction from everyone including his bride! It was only some years after her wedding did Poorna discover the truth by which time they had not only lost their home but were deep in debt. Mental health issues plague many but it is rarely discussed openly for the social stigma attached to it. Slowly there is a perceptible shift in this discourse too as more and more people are sharing their experiences of grappling with mental health issues or with their loved ones. This is critical since the caregivers too need support. It always helps to share information and challenging moments with caregivers in a similar situation without being judged — something those on the outside inevitably do.

Another fashionable trend in narrative non-fiction is to write histories of a significant medical occurrence. In this case Speaking Tiger Books has published the doctors-cum-writers team Kalpish Ratna’s competently told The Secret Life of Zika Virus . 


Bloomsbury has published a former consumption patient and scientist Kathryn Loughreed’s packed-with-information account Catching Breath: The Making and Unmaking of Tuberculosis  

Many, many more have been published. Many are readable. Many are not. It is a fine balancing act between an overdose of specialist information and storytelling. The fact is ever since access to information using digital tools became so accessible there been a noticeable explosion of science-based texts in publishing worldwide and it is not a bad thing at all!

An article worth reading is by Dr Siddhartha Mukherjee in NYT “The Rules of the Doctor’s Heart“, published on 24 October 2017. It is about his experience as a senior resident at a hospital in Boston in the Cardiac Care Unit, a quasi I.C.U. where some of the most acutely ill patients were hospitalized. One of his patients was a fifty-two-year-old doctor and scientist who had been admitted to await a heart transplant. It is an incredible essay!

Maylis de Kerangal  Mend the Living ( Translated by Jessica Moore) Maclehose Press, 2017. Distributed by Hachette India 

Poorna Bell Chase the Rainbow Simon and Schuster India 

Kalpish Ratna The Secret Life of Zika Virus Speaking Tiger Books 

Kathryn Loughreed Catching Breath: The Making and Unmaking of Tuberculosis Bloomsbury 

6 Oct 2017 , updated on 30 Oct 2017 

“How to Disappear” and “Project Semicolon”

Mental health issues at the best of times are rarely discussed. It continues to be a socially taboo subject despite it affecting millions of people across the world and of all ages. Despite it being an information rich world now where there are myriad ways of being able to communicate with people 24×7, loneliness and severe mental stress is on the rise. Recently I read a young adult novel How to Disappear and Project Semicolon: Your Story Isn’t Over published by Project Semicolon that consists of  testimonies by people affected by or have witnessed those suffering with mental health issues.

How to Disappear is about a shy and reserved young girl, Vecky Decker, who rarely meets or interacts with anyone, even with her classmates. The only person she is fond of is an old schoolfriend, Jenna, who has now moved to another city. The novel is about her discovering a new life through her virtual life by creating an Instagram account which belies her reality. She accrues more than 2 million followers. Yet ironically she continues to be a fairly lonely girl in real life. Later of course the plot morphs into a predictable sugary conclusion with Jenna becoming a local heroine for her good deed. She uses her vast social media network to find her lost friend, Jenna, whom she suspects is on her way to a cliff to kill herself.

Project Semicolon is an equally disconcerting book for the varied number of testimonies it has gathered. It not only gives an insight into the minds of people crumbling internally though outwardly all may seem well but it also helps in imparting a message of hope. For many of these accounts are by people who have survived a particularly rough patch in their lives either tackling their own mental health issues or of their loved ones.

Both the books are worth considering for a library where these can be shared widely. Mental health issues are not to be taken lightly and must be discussed frankly.

Sharon Huss Roat How to Disappear Harper Teen, an imprint of Harper Collins Publishers, NYC, 2017. Hb. pp. 380 

Project Semicolon: Your Story Isn’t Over Harper, an imprint of HarperCollinsPublishers , NYC, 2017. Pb. pp. 

 

 

 

Cathy Rentzenbrink

Reading Cathy Rentzenbrink’s memoir The Last Act of Love and the companion to it A Manual for Heartache is a gut wrenching experience. The Last Act of Love was shortlisted for the Wellcome Prize 2016   for its an account of how Cathy Rentzenbrink’s younger brother Matt had a head injury and was for eight long years in a coma. The medical term for it is PVS or “permanent vegetative state” or as their mother says of Matt “living corpse”. Matt was a teenager in his prime when he met with an accident that left him in this horrific state. The Last Act of Love is a compassionate account of a sister trying to understand what her brother must be going through if he can feel anything. More importantly it is an account of how much of themselves caregivers have to give to ensure that a patient is cared for well.

Caregiving can be a thankless task since it is repititive with no breaks whatsoever. After a while the sympathetic circle of friends and relatives return to their lives but the immediate family of the patient is responsible for the daily courageous and relentless task of caregiving. At times it can become exceedingly lonely, stressful and mentally debilitating. For Cathy Rentzenbrick her escape mechanism was reading.

Reading was still my friend, though. I read continuously and compulsively, drowning out sounds of my own thoughts with the noise of other people’s stories. I no longer turned out the light before going to sleep — I had to read until the moment my eyes closed. There could be no gap for the demons to jump into. 

Most caregivers are caught in a cycle of maintaining systems that they forget to take care of themselves or share experiences about the roles they inhabit. These involve a bunch of questions about the quality of life the patient has to how effective are advancements in medical technology.

The Last Act of Love written  many years after her brother passed away takes its title from a phrase the author’s mother used in her sworn affidavit to the court seeking legal permission to discontinue nutrition and hydration given how poorly Matt was with a chest infection and recurring epileptic fits.

I have known for some time that there is nothing I can do for Matthew to enrich his life in any way. He needs to die. We had hoped it would happen with an infection and without the need to approach the court. But the sad irony is that his poor body, unable to do anything else, seems capable of fighting infection. So we are asking the court’s permission to cease nutrition and hydration so that Matthew can be released from his hopeless state. It is our last act of love for him. 

Writing The Last Act of Love may have been thereapeutic for Cathy Rentzenbrick but it certainly provides a much needed account of hope and a way of managing caregiving at home, many times the dilemma it presents. Sharing of stories is a relief for many in a similar situation but few have time to do so. Reading an account is possible.

Within months of the successful publishing of The Last Act of Love, Cathy Rentzenbrick wrote A Manual for Heartache which can be viewed as a sequel to her memoir but works very well as a manual for managing grief and loss. It is full of wisdom and gently with big dollops of kindness shares wisdom garnered over the years of caregiving for Matt.

 

Here are some invaluable excerpts from the book

On grief

What I now wish someone had told me is this: life will never be the same again. The old one is gone and you can’t have it back. What you might at some point be able to encourage yourself to do, and time will be an ally in this, is work out how to adjust to your new world. You can patch up your raggedy heart and start thinking and feeling your way towards how you want to live. That’s what I wish someone had told me and that’s what I want to tell you. I think I’m finally doing it.

On etiquette of bad news

It seems ridiculous that in the face of someone else’s misfortune we spend time worrying about our own behavious, but it’s only human and is particularly true when it comes to death and grief. I’m sure it was easier in Victorian times when there were prescribed rules, when society and the Church provided a framework. There was guidance on what to wear, how to communicate with people, how much time should elapse before everyone rejoined the business of life. Visible signs such as black crepe and mourning brooches made of jet acted as clues to the rest of the world. Like a version of the “Baby on Board” sign stuck in the back windscreen of a car, the blackness served as a warning that an individual needed to be treated kindly. All cultures have rituals around death and mourning but, in our increasingly secular society, it’s easy find ourselves unsure of what to do. 

….

I have come to see there is a beauty in simply being present for someone who is struggling wiht a heavy burden. The best thing you can offer is unlimited kindness. People to whom the worst has happened can be out-of-control sad and unable to obey the normal rules of life. It mught be all they can do to hold on. If they are mean or cruel or temporarily incapable of good manners, we need to suspend our expectations around them and give them space and compassion as they splinter and behave badly and say the wrong thing. If they are behaving perfectly and holding themselves together, then that’s OK, too. 

Reading both the books together is highly recommended. Share, share, share these books.

Update ( 5 Sept 2017)

The Guardian Longreads published a fascinating account of “How science found a way to help coma patients communicate“. It is worth reading!

Cathy Rentzenbrick The Last Act of Love Picador, an imprint of Pan Macmillan, London, 2015. Pb. pp.248 Rs 450

Cathy Rentzenbrick A Manual for Heartache Picador, an imprint of Pan Macmillan, London, 2017. Hb. pp. 150 Rs 499 

31 August 2017